Grieving a loved one with dementia is unlike any other loss—it happens in slow motion, stretching over months and years, long before death arrives. As memory fades and recognition slips away, caregivers face the heartbreaking reality of saying goodbye over and over again while carrying the weight of love, duty, and exhaustion. This deeply personal story explores the hidden grief of dementia, the emotional toll on caregivers, and the resilience found in the smallest moments of connection. If you are walking this path, know that you are not alone.
(Note: About Us, a reference bibliography, related books, videos and apps can be found at the end of this article.)
In the complex world of caregiving, unpaid family caregivers often find themselves shouldering the majority of responsibilities while facing judgment from family members who are not involved in daily care. This article highlights the disproportionate expectations placed on caregivers, particularly women, and emphasizes the importance of empathy, understanding, and support. It advocates for a shift from criticism to compassion, allowing caregivers to make hard decisions with confidence and free from guilt.
(Note: About Us, a reference bibliography, related books, and videos can be found at the end of this article.)