As our population ages, the healthcare system faces increasing pressure to adapt to the unique needs and challenges of older people. This demographic, characterized by its diverse health issues and increased demand for care, stands at the crossroads of modern healthcare’s evolution. The elderly population’s healthcare requirements are not just quantitatively more significant; they are qualitatively different, necessitating a nuanced approach to care and advocacy. Their conditions often require frequent monitoring, various specialist interventions, and an increased need for personal care and support.
The importance of tailored support and advocacy (including self-advocacy) for the elderly cannot be overstated. As healthcare becomes more complex and specialized, the gap between the services provided and the specific needs of the elderly widens. This is particularly true in light of the shift towards modern healthcare models, including the rise of telemedicine, which, while offering numerous benefits, also presents new challenges for the elderly. These challenges include navigating digital platforms, understanding new modes of care delivery, and ensuring that their comprehensive care needs are met remotely.
(Note: About Us, a reference bibliography, related books, and videos can be found at the end of this article.)
Kaiser healthcare services serve as a pertinent example of this evolving healthcare landscape. Known for its pioneering approach to integrated care and the use of digital health platforms, Kaiser’s model epitomizes the benefits and challenges faced by the elderly in today’s healthcare system. While offering streamlined access to a range of services, it also underscores the necessity for the elderly to be active participants in their healthcare journey. This task can be daunting for those less familiar with digital technology or those facing cognitive decline.
The necessity of self-advocacy in ensuring adequate care is a significant hurdle for many elderly individuals. Navigating the healthcare system, voicing concerns, doing your own research, and making informed decisions about one’s care requires assertiveness and knowledge that age-related factors may diminish. Additionally, the elderly may encounter societal biases that undermine their self-advocacy efforts, further complicating their ability to secure the care they need.
This article aims to explore these complexities, offering insights into the unique healthcare needs of the elderly, the challenges of modern healthcare delivery, and the critical role of advocacy in securing appropriate care. Through this exploration, we highlight strategies for empowering the elderly and their caregivers, ensuring that our healthcare system evolves in technological sophistication, compassion, and accessibility for all.
The Unique Healthcare Needs of the Elderly
The healthcare landscape for the elderly is marked by a constellation of complex, multifaceted needs that distinguish them significantly from younger populations. These needs are not only more frequent and intense due to the prevalence of chronic conditions but are also nuanced by the interplay of psychological, physical, cultural, and cognitive factors. Common health issues faced by the elderly include chronic diseases such as heart disease, diabetes, arthritis, and dementia, alongside the natural decline in physical and sometimes cognitive abilities. These conditions necessitate a comprehensive, multidisciplinary approach to care, emphasizing the necessity for frequent monitoring, medication management, and both physical and emotional support.
Psychological and physical barriers often lead to the elderly’s denial about the severity of their health issues. Fear of losing independence, reluctance to burden family members, and the stigma associated with aging and dependency can all contribute to this denial. Additionally, the generational values of stoicism and self-reliance may prevent the elderly from acknowledging their vulnerabilities and expressing their healthcare needs effectively. The cultural shift in the doctor-patient relationship further compounds this mindset. Historically, physicians took a more paternalistic role, advocating for their patients’ health without the need for patients to assert themselves aggressively. Many elderly individuals, accustomed to this dynamic, find themselves ill-equipped to navigate a healthcare system that requires them to be more proactive and assertive in their care.
Cognitive factors also play a critical role in the elderly’s healthcare journey. Cognitive decline, ranging from mild cognitive impairment to advanced dementia, can impair their ability to comprehend complex health information, remember appointments, and adhere to treatment plans. This decline hampers their capacity to assert their needs and makes it challenging to participate actively in decision-making processes regarding their care.
The cumulative impact of these barriers is significant, often hindering the elderly’s ability to seek and receive the appropriate care. The reluctance or inability to communicate effectively about their health concerns can lead to delayed diagnoses, suboptimal treatment plans, and, ultimately, deteriorations in health that could have been mitigated with timely intervention. Furthermore, the healthcare system’s increasing reliance on patient self-advocacy and self-management models exacerbates these challenges, placing those needing help to navigate these demands at a distinct disadvantage.
Addressing the unique healthcare needs of the elderly, therefore, requires a sensitive, multifaceted approach. It necessitates not only the adaptation of healthcare services and systems to be more accessible and responsive but also a societal shift in how we perceive and support the aging process. By understanding and dismantling the barriers faced by the elderly in accessing care, we can move towards a more inclusive, equitable healthcare system that respects and meets the needs of every individual, regardless of age.
Challenges in Self-Advocacy for the Elderly
Self-advocacy in healthcare is a vital skill that empowers individuals to communicate their needs, preferences, and concerns. For seniors, however, several barriers can hinder their ability to effectively advocate for themselves, often leading to compromised access to care and poorer health outcomes.
Key Barriers to Self-Advocacy:
Cognitive Decline: As people age, they may experience cognitive changes, ranging from mild impairments to more severe conditions like dementia. These changes can impact memory, comprehension, and decision-making abilities, making it difficult to grasp complex medical information, follow treatment plans, or even recognize when medical help is needed. This can significantly limit a senior’s ability to participate actively in their own care decisions.
Technological Challenges: The shift towards digital healthcare—including telemedicine and online patient portals—poses significant obstacles for many elderly individuals. Those unfamiliar or uncomfortable with technology may struggle to navigate these platforms, which are increasingly essential for scheduling appointments, accessing medical records, and communicating with healthcare providers. This digital divide can leave seniors disconnected from their healthcare teams, making self-advocacy even more difficult.
Societal Biases and Ageism: Ageism in healthcare often results in the dismissal of seniors’ health concerns as “just part of getting older.” This tendency to attribute all symptoms to aging can lead to delayed diagnoses, under-treatment, or even disregard for legitimate health concerns. Additionally, seniors may feel overlooked in a healthcare system that prioritizes speed, efficiency, and technology over human-centered, compassionate care.
Cultural Norms and Deference to Authority: Many seniors grew up in a time when deference to medical professionals was the norm. While trusting in doctors is still important, today’s healthcare landscape has shifted. Medicine has become increasingly driven by economics and efficiency, often resembling a system of healthcare delivery rather than the patient-centered practice of medicine it once was. In this environment, it is more critical than ever for seniors to speak up, ask questions, and advocate for their own health needs. Self-advocacy is not impolite or inappropriate; it is essential for receiving the care they deserve.
- Gender Norms and Discomfort with Assertion: Gender roles, particularly for older generations, have long shaped how women interact with authority figures, including healthcare providers. Many elderly women were socialized to be accommodating rather than assertive, which can make it uncomfortable for them to voice concerns, ask questions, or challenge medical decisions. Additionally, societal biases often make it less acceptable for women to assert themselves compared to men. When women do advocate for their own health needs, they may face more pushback or be perceived as “difficult” or emotional, whereas men advocating for themselves are often seen as confident or decisive. This disparity can further discourage self-advocacy, leading to inadequate care or overlooked concerns for elderly women.
The Role of Caregivers and Healthcare Professionals:
Recognizing these challenges is the first step toward addressing them. Caregivers and healthcare professionals are pivotal in bridging the gap between the elderly and their access to care. They can act as advocates, translators, and mediators, ensuring the elderly’s health concerns are heard, understood, and appropriately addressed. This involves:
- Actively listening to their concerns.
- Providing support in navigating the healthcare system.
- Adapting communication methods to suit their cognitive and technological capabilities.
Strategies to Empower the Elderly:
Empowering the elderly to be more proactive about their healthcare needs involves a multi-pronged approach:
- Education and Support: Providing education on how to navigate the healthcare system effectively, understand health information, and use digital health tools can empower the elderly. Support groups and community programs can also play a role in building confidence and skills in self-advocacy.
- Adaptive Communication Tools: Developing and implementing communication tools and technologies tailored to the elderly’s needs and capabilities can enhance their engagement with healthcare providers and services.
- Promoting Patient-Centered Care: Encouraging a healthcare culture that values and practices patient-centered care can help mitigate the effects of societal biases. This includes training healthcare professionals to recognize and address the unique challenges faced by the elderly, ensuring they are treated with respect and dignity.
- Involvement of Family Members and Caregivers: Involving family members and caregivers in the healthcare process, with the consent of the elderly patient, can provide additional support in advocacy efforts. This partnership can ensure that the elderly’s preferences and needs are communicated effectively and that they receive the care and treatment they require.
By addressing the challenges in self-advocacy for the elderly and implementing strategies to empower them, we can ensure that they are active participants in their healthcare journey. This improves their access to necessary care and enhances their autonomy and dignity as individuals.
The Evolving Healthcare Model and Its Impact
The healthcare landscape is undergoing a significant transformation, with telemedicine and digital healthcare platforms becoming increasingly prevalent. This shift promises to reshape care delivery, offering new opportunities and challenges, particularly for elderly patients. Understanding the impact of these changes is crucial for ensuring that the healthcare needs of the elderly are met effectively and compassionately.
Accessibility and Usability:
Telemedicine has the potential to greatly enhance accessibility to healthcare services for the elderly, especially for those living in remote areas or with mobility issues. By allowing patients to consult with their healthcare providers from the comfort of their own homes, telemedicine can reduce the need for transportation, minimize physical discomfort, and alleviate the stress associated with in-person visits.
However, the transition to digital platforms has significant usability challenges for many elderly patients. The design and navigation of many telemedicine interfaces may not be intuitive for users who are not tech-savvy. Furthermore, the lack of familiarity with digital devices and the internet can create barriers to accessing these services, potentially leading to frustration, disengagement, and missed care opportunities.
Pros and Cons of Telemedicine for the Elderly:
Pros:
- Increased Accessibility: Telemedicine can make healthcare more accessible for elderly patients by breaking down geographical and physical barriers to care.
- Convenience: The ability to receive care at home can save time and reduce the physical strain of traveling to healthcare facilities.
- Flexibility: Digital platforms can offer more flexible appointment scheduling options, making it easier for elderly patients to fit healthcare into their routines.
Cons:
- Decreased Personalization: The remote nature of telemedicine may result in a perceived lack of personal connection between patients and healthcare providers. This can be particularly challenging for elderly patients who value face-to-face interactions and may feel less comfortable virtually communicating their needs and concerns.
- Technology Challenges: Telemedicine relies on the necessary technology and a stable internet connection, which may not be readily available to all elderly patients. Additionally, navigating digital platforms can be daunting for those with limited technology experience.
- Potential for Oversights: There is a risk that subtle health issues, which might be noticed during an in-person examination, could be overlooked in a virtual setting. This is of particular concern for elderly patients with complex health profiles.
As telemedicine and digital healthcare platforms become more integrated into the healthcare system, it is essential to address these challenges to ensure that the benefits of these innovations are accessible to all, especially the elderly. This includes investing in user-friendly design, providing technology training and support, and developing hybrid models of care that combine the convenience of telemedicine with the personal touch of traditional in-person visits. By doing so, we can leverage the advantages of digital healthcare while mitigating its potential drawbacks, ensuring that the evolving healthcare model serves the unique needs of elderly patients.
Case Study: Kaiser Healthcare Services
Kaiser Permanente stands as a leading example in the evolution of healthcare delivery, operating on an integrated model that combines care and coverage. This model, known for its emphasis on preventive care and the extensive use of electronic health records (EHRs) and telemedicine, aims to provide efficient, coordinated care. Kaiser’s approach, while pioneering, offers a valuable lens through which to examine the implications of modern healthcare models on elderly patients.
Overview of the Kaiser Model:
Kaiser’s healthcare delivery system is built around an integrated model that seeks to streamline the patient experience. By housing medical services and insurance coverage under one roof, Kaiser aims to simplify access to healthcare, improve patient outcomes through coordinated care, and reduce unnecessary costs. The model leverages technology extensively, using EHRs to maintain comprehensive patient records and telemedicine to expand access to care.
Benefits and Challenges for Elderly Patients:
Benefits:
- Coordinated Care: The integrated nature of Kaiser’s model facilitates coordinated care, which is particularly beneficial for elderly patients with multiple health issues. A single, unified record of a patient’s medical history aids in healthcare providers’ better-informed decision-making.
- Preventive Focus: Kaiser’s emphasis on preventive care can help identify and manage health issues before they become severe, aligning well with the needs of elderly patients who require regular monitoring and care.
- Accessibility: Telemedicine services offered by Kaiser can enhance access to care for elderly patients, reducing the need for physical travel and making healthcare more accessible to those with mobility challenges.
Challenges:
- Self-Advocacy: Kaiser’s model, emphasizing efficiency and technology, underscores the importance of proactive patient care. This requirement can be daunting for elderly patients, especially those not technologically adept or used to more traditional, face-to-face interactions with healthcare providers.
- Technology Use: While telemedicine improves access, it also requires patients to navigate digital platforms, which can pose a significant barrier for some elderly individuals. The reliance on technology may inadvertently exclude those uncomfortable or unfamiliar with digital devices.
- Personalization of Care: The extensive, systematized nature of Kaiser’s healthcare delivery can sometimes lead to less personalized experiences. Elderly patients, who may have complex care needs and value personal relationships with their caregivers, might find this aspect of the model challenging.
Examples of Excellence and Shortcomings:
Kaiser excels in providing a seamless healthcare experience with its preventive care approach and efficient use of technology for managing patient health records and facilitating telehealth appointments. However, the model may fall short in meeting the specific needs of the elderly who struggle with technology, requiring more personalized care and assistance in navigating the healthcare system.
To address these challenges, Kaiser and similar healthcare models can invest in patient education programs focusing on technology use, enhance the personalization of telemedicine encounters, and ensure robust support systems for patients requiring more hands-on assistance. By doing so, they can make their pioneering healthcare model even more inclusive, ensuring that elderly patients receive the care and support they need in an evolving healthcare landscape.
Solutions and Recommendations
The shifting healthcare delivery paradigms pose distinct challenges for elderly patients, highlighting the need for a comprehensive strategy to ensure their well-being and access to care. The following proposals, recommendations, and practical advice aim to fortify the support framework for elderly individuals within the healthcare system.
For Healthcare Systems and Providers:
- Training in Geriatric Care: Healthcare professionals must undergo specialized training in senior care to understand the complex health dynamics of elderly patients. This training should encompass both the medical and technological facets of patient care, particularly emphasizing the integration of telemedicine into routine practices.
- Improving Telemedicine Accessibility: Design telemedicine platforms with elderly users in mind, incorporating intuitive interfaces and clear instructions. Establishing readily available tutorials, helpdesks, and support lines can demystify digital healthcare tools, making them more accessible to elderly patients.
- Developing Patient Advocacy Programs: Healthcare institutions should create advocacy programs for elderly patients. These initiatives would support them in navigating the healthcare system, enabling informed decision-making and ensuring their healthcare preferences are respected and met.
Recommendations for Policy Changes:
- Strengthening Medicare and Medicaid: Advocate for policies that ensure comprehensive coverage of senior care needs by Medicare and Medicaid, including telemedicine, home health care, and long-term care services.
- Support for Caregiver Training: Implement policies that offer resources and training to caregivers, acknowledging their indispensable role in the healthcare ecosystem for the elderly. Support mechanisms include financial incentives, educational workshops, and community support networks.
- Legislation for Digital Accessibility: Push for legislation mandating that telemedicine and digital health platforms adhere to strict accessibility standards. This ensures these technologies are accessible to elderly patients, regardless of their technological proficiency.
Tips for the Elderly and Their Caregivers:
- Educate Yourself: Stay informed about your medical conditions and available healthcare options. A wealth of resources, accessible online and in physical formats, can offer invaluable insights into managing health effectively.
- Utilize Support Networks: Encourage reaching out to support networks, including family, friends, and community organizations, to help manage healthcare logistics and decision-making.
- Open Communication with Healthcare Providers: Advocate for clear and proactive communication with healthcare professionals. Preparing questions beforehand and seeking comprehensive explanations can clarify care plans and foster better healthcare outcomes.
Role of Churches and Non-Profits:
- Churches and eldercare-focused non-profits can significantly contribute to advocating for elderly care. By offering services such as healthcare system navigation, transportation to medical appointments, and digital literacy workshops, these organizations can ensure elderly patients’ needs and voices are acknowledged and addressed.
Temporary Health Care Directive:
- Consider the development of a temporary (24-hour) healthcare directive that allows advocates to be actively involved in the healthcare process. This directive could facilitate the presence and participation of advocates in medical decisions, ensuring elderly patients receive the appropriate care and attention.
Involvement of Adult Children:
- Adult children play a vital role in championing the healthcare needs of their elderly parents. This involvement can range from accompanying them to medical appointments to managing healthcare documentation and advocating for necessary adjustments in treatment plans.
By embracing these solutions and recommendations, we can cultivate a healthcare environment that respects and prioritizes the dignity and needs of the elderly. Collaborative efforts between healthcare providers, policymakers, families, and community support systems are crucial in overcoming the obstacles faced by elderly patients and improving their overall quality of life.
Conclusion/Summary
The journey through the evolving landscape of modern healthcare presents numerous challenges for the elderly, highlighting a critical need for tailored support and effective advocacy. As this article has explored, the unique healthcare needs of the elderly—characterized by complex medical conditions, cognitive and physical barriers, and the intricacies of navigating digital healthcare platforms—demand a nuanced approach that respects their dignity and addresses their comprehensive care requirements.
The shift towards telemedicine and digital health services, while offering potential benefits in terms of accessibility and efficiency, also underscores the importance of ensuring these innovations are inclusive and accessible to all, especially the elderly. The Kaiser Healthcare Services case study serves as a pertinent example of the benefits and challenges inherent in modern healthcare models, emphasizing the need for elderly patients to advocate for themselves and for the system to facilitate this advocacy.
This situation calls for a concerted effort from healthcare providers, policymakers, and communities to prioritize and address the needs of the elderly population. Healthcare providers must embrace patient-centered care that acknowledges the unique challenges faced by elderly patients, incorporating geriatric training and developing advocacy programs tailored to their needs. Policymakers should work to ensure that healthcare policies and systems are designed to support the elderly effectively, including improving Medicare and Medicaid, enhancing the accessibility of telemedicine, and supporting caregivers. Communities, including churches and non-profit organizations, have a role in providing support and advocacy for the elderly, ensuring they have the resources and assistance needed to navigate their healthcare journey successfully.
In conclusion, the aging of our population calls for an adaptive healthcare system that is not only technologically advanced but also compassionate and responsive to the needs of its most vulnerable members. By advocating for tailored support and prioritizing the unique needs of the elderly, we can ensure that our healthcare system evolves in a direction that genuinely serves everyone. It is a call to action for all stakeholders in the healthcare ecosystem to work collaboratively towards a future where the elderly receive the care, respect, and dignity they deserve.
All text © 2024 James M. Sims and all images exclusive rights belong to James M. Sims and Midjourney or DALL-E, unless otherwise noted.
References
Related Cielito Lindo ArticlesSims, J. M. (2024, February 20). Empowering seniors: AI tools for effective healthcare advocacy. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/empowering-seniors-ai-tools-for-effective-healthcare-advocacy/
Sims, J. M. (2024, January 18). Ensuring quality care: The crucial role of self-advocacy in a flawed healthcare system. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/ensuring-quality-care-the-crucial-role-of-self-advocacy-in-a-flawed-healthcare-system/
Sims, J. M. (2023, December 15). Health care inequalities for our elderly. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/health-care-inequalities-for-our-elderly/
Sims, J. M. (2023, November 22). Telemedicine and the elderly: Overcoming challenges and embracing opportunities. Cielito Lindo Senior Living. https://www.cielitolindoseniorliving.com/blog/telemedicine-and-the-elderly
Sims, J. M. (2023, October 5). Precision medicine: A more effective approach for comorbidities and polypharmacology for the elderly. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/precision-medicine-a-more-effective-approach-for-comorbidities-and-polypharmacology-for-the-elderly/
Sims, J. M. (2023, September 22). Embracing control: How 12 risk factors shape our health and longevity. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/embracing-control-how-12-risk-factors-shape-our-health-and-longevity/
Sims, J. M. (2022, October 15). Empowering the elderly in the digital healthcare age. Cielito Lindo Senior Living. https://www.cielitolindoseniorliving.com/blog/empowering-elderly-digital-healthcare
Articles and Guides
Band-Winterstein, T. (2015). Health care provision for older persons: The interplay between ageism and elder neglect. Journal of Applied Gerontology, 34(3), NP144-NP160. https://doi.org/10.1177%2F0733464813494928
Chopik, W. J. (2016). The benefits of social technology use among older adults are mediated by reduced loneliness. Cyberpsychology, Behavior, and Social Networking, 19(9), 551-556. https://doi.org/10.1089/cyber.2016.0151
Quail, M., Wolfson, C., & Lippman, A. (2011). Unmet need for assistance to perform activities of daily living and psychological distress in community-dwelling elderly women. Canadian Journal on Aging/La Revue canadienne du vieillissement, 30(4), 591-602. https://doi.org/10.1017/S071498081100052X
Shah, S. J., Schwamm, L. H., & Cohen, A. B. (2017). Virtual visits partially replaced in-person visits in an ACO-based medical specialty practice. Health Affairs, 36(12), 2045-2051. https://doi.org/10.1377/hlthaff.2017.0830
Wosik, J., Fudim, M., Cameron, B., Gellad, Z. F., Cho, A., Phinney, D., Curtis, S., Roman, M., Poon, E. G., Ferranti, J., & Katz, J. N. (2020). Telehealth transformation: COVID-19 and the rise of virtual care. Journal of the American Medical Informatics Association, 27(6), 957-962. https://doi.org/10.1093/jamia/ocaa067
Websites
Centers for Medicare & Medicaid Services. (2020, December 28). Medicare and Medicaid programs; policy and regulatory revisions in response to the COVID-19 public health emergency. Federal Register, 85(252). https://www.govinfo.gov/content/pkg/FR-2020-12-28/pdf/2020-26815.pdf
TEDxWaterStreet. (2021, May 27). The secret to self-advocacy | Bhavana Bartholf [Video]. YouTube. https://www.youtube.com/watch?v=FkgQ9f7KJaw&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=21
TEDxTucson. (2021, April 15). Advocate for your health | Molly Hottle [Video]. YouTube. https://www.youtube.com/watch?v=Grs5rS0q5nk&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=20
Vogel, K. (2021, April 20). Patient advocates can save your money and your life [Video]. YouTube. https://www.youtube.com/watch?v=T5C880rQlUY&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=19
Research Papers
Allen, J. E., & Annells, M. (2009). Development of a telehealth model of care for the older person in residential care: An action research study. Journal of Telemedicine and Telecare, 15(5), 236–239. https://doi.org/10.1258/jtt.2009.081213
Books
Rothkopf, C., & Edwards, Z. C. (2022). Navigating your healthcare journey: Lessons learned to get the care you need and deserve. Healthcare Advocacy Press. ISBN: 9781732432950
Resources
Patient Advocates Can Save Your Money And Your Life (HBO)
The American healthcare system’s complexity has led to the rise of patient advocates like Karen Vogel, who help individuals navigate the system effectively. Advocates like Karen save clients money by fixing billing errors and ensuring they reach their out-of-pocket maximum. The demand for patient advocates is growing due to the fragmented nature of healthcare. Advocates like Anne-Marie McIlwain intervene during life-threatening situations and coordinate complex care remotely. Their role is crucial in ensuring proper communication with healthcare providers and saving clients from unnecessary costs and stress.
View the video here. https://www.youtube.com/watch?v=T5C880rQlUY&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=19
Highlights:
0:52 – Karen Vogel transitioned from working in insurance to becoming a patient advocate.
1:25 – Patient advocates help individuals navigate the complex American healthcare system effectively.
2:26 – Patient advocates can save individuals thousands of dollars by fixing errors in healthcare billing.
3:33 – Patient advocates ensure that clients reach their out-of-pocket maximum to alleviate financial concerns.
4:10 – The demand for patient advocates is increasing due to the fragmented nature of the American healthcare system.
5:01 – Patient advocates intervene during life-threatening situations to ensure proper care is received.
5:53 – Patient advocates like Anne-Marie McIlwain coordinate complex care for clients remotely.
6:24 – Patient advocates assist clients during medical appointments to ensure proper communication with healthcare providers.
The Secret to Self-Advocacy | Bhavana Bartholf | TEDxWaterStreet
The speaker shares her journey of self-discovery influenced by her grandfather, emphasizing the power of choice and self-advocacy. Reflecting on the pandemic, she appreciates life’s simple joys and realizes the need for change. Conversations with women globally highlight the struggle with self-advocacy due to societal expectations. Gender stereotypes impact women’s ability to advocate for themselves. Introducing “Bhavna’s Wager,” she stresses the benefits of self-advocacy. The speaker presents five steps to unlock self-advocacy secrets, starting with imagining possibilities and embracing personal journeys to boost confidence.
The speaker emphasizes the importance of women taking the first step towards self-advocacy and systemic change. Despite progress, women remain underrepresented and undervalued in various sectors. It is crucial for women to leverage their strengths, ask boldly, and build a supportive network to drive change. The call to action is for women everywhere to imagine the impact of collectively advocating for themselves. The speaker’s message resonates with the need for women to unite, disrupt inequities, and create a shift towards a more equitable future.
View the video here. https://www.youtube.com/watch?v=FkgQ9f7KJaw&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=21
Highlights:
0:15 – Growing up in India with a progressive grandfather who encouraged self-discovery.
1:38 – Realizing the power of choice and self-advocacy.
2:28 – Reflecting on life during the pandemic and appreciating the little things.
4:08 – Recognizing the importance of self-advocacy after conversations with women worldwide.
5:00 – Gender stereotypes affecting women’s self-advocacy.
6:01 – Introducing “Bhavna’s Wager” to emphasize the benefits of self-advocacy.
7:30 – Introducing five steps to unlock the secrets of self-advocacy, starting with imagining possibilities.
8:37 – Encouraging the honoring and sharing of personal journeys to boost self-confidence.
09:05 – Realizing capabilities during tough times leads to growth and uniqueness.
09:39 – Sharing your authentic story builds connections and empowers self-advocacy.
10:10 – Recognizing choices and facing fears leads to a greater range of options.
11:27 – Knowing your choices empowers you to be in control.
12:10 – Courage is essential for embracing fear and asking for what you want.
13:54 – Having a supportive network of people uplifts and empowers self-advocacy.
15:00 – Women globally stepped up during the pandemic but are still underrepresented and undervalued.
16:33 – The system, not lack of talent, hinders women’s progress in the workforce.
17:26 – Women must work together to disrupt inequities and create systemic change.
17:50 – Empowering women to ask for what they want can spark a powerful movement.
Advocate for Your Health | Molly Hottle | TEDxTucson
The video discusses the importance of health literacy through three compelling stories. Tony’s experience highlights the consequences of feeling overwhelmed and not asking the right questions at the doctor’s office. Lili’s tragic outcome emphasizes the impact of misunderstandings between patients, parents, and healthcare providers. The speaker’s personal anecdote of a surprise medical bill stresses the importance of advocating for oneself in healthcare. The video also mentions the high number of deaths due to misunderstandings in healthcare and uses Rudy Giuliani’s case to illustrate poor health literacy. Lastly, the video explains health literacy using a paragraph example, emphasizing the challenges faced by individuals with poor health literacy.
The speaker concludes by highlighting the critical role of advocating for oneself and others in healthcare settings. They stress the importance of asking questions, seeking clarification, and taking notes during medical appointments. The personal story shared underscores the devastating impact of poor health literacy and the necessity of having advocates to ensure comprehensive understanding and support. The video ultimately encourages viewers to be proactive in managing their health, emphasizing the significance of being informed and assertive in healthcare interactions.
View the video here. https://www.youtube.com/watch?v=Grs5rS0q5nk&list=PLmB2dHqb_WqDKBPBbzBz6KTdfkyPwvr1D&index=20
Highlights
0:13 – Introduction of three stories about health literacy
1:00 – Tony’s experience of feeling overwhelmed at the doctor’s office
2:03 – Story of Lili’s tragic outcome due to misunderstandings between her parents and doctors
3:01 – Speaker’s personal story of receiving a surprise $2,000 medical bill
4:09 – Mention of deaths due to misunderstandings in healthcare
5:26 – Example of Rudy Giuliani’s confusion due to poor health literacy
6:06 – Explanation of health literacy using a paragraph as an example
07:42 – Feeling overwhelmed at the doctor’s office due to lack of information on insulin and blood sugar.
08:31 – Poor health literacy can lead to severe consequences like blindness, amputation, and diabetic coma.
09:00 – Poor health literacy is a significant issue costing billions and increasing ER visits.
10:00 – Encouragement to ask questions and advocate for oneself in healthcare.
11:04 – Importance of taking control of your health by asking questions and seeking clarification.
12:43 – Taking a loved one or friend to appointments as advocates for better understanding and support.
13:26 – Personal anecdote of a tragic incident due to a lack of health literacy and understanding.
14:00 – Emphasizing the importance of having an advocate in healthcare situations.
14:26 – Encouragement for patients to take control of their health and be proactive in seeking information and support.
Book Review: Navigating Your Healthcare Journey: Lessons Learned to Get the Care You Need and Deserve by Charlene Rothkopf and Z. Colette Edwards, MD, MBA
Overview
This empowering guidebook is designed to help patients and caregivers confidently navigate the often overwhelming healthcare system. Authors Charlene Rothkopf, a healthcare advocate, and Dr. Z. Colette Edwards, a physician, aim to demystify the healthcare experience by providing tools and strategies to secure the care you or your loved ones need and deserve. The book avoids prescribing medical advice or promoting any specific treatments, instead focusing on the skills and knowledge required to advocate effectively in various healthcare settings.
Synopsis
Navigating Your Healthcare Journey offers a step-by-step roadmap for those struggling to manage the complexity of modern healthcare. The book addresses issues such as how to communicate effectively with healthcare providers, understand and handle insurance, prepare for appointments, and manage follow-ups. The authors also discuss the importance of being proactive, whether it’s asking the right questions during doctor visits or understanding medical terminology to make informed decisions. Rothkopf and Edwards provide practical advice for both routine care and more serious health crises, equipping readers to be active participants in their healthcare.
Key Themes
- Self-Advocacy: A core message of the book is empowering patients and caregivers to speak up and take control of their healthcare decisions.
- Patient Education: By educating readers on key aspects of the healthcare system, the authors give patients the confidence to engage with complex medical environments.
- Communication Skills: The authors stress the importance of clear communication with doctors, nurses, and healthcare staff, offering tips on how to express concerns, ask relevant questions, and ensure you are heard.
- Resource Management: The book provides advice on understanding insurance, handling billing issues, and making the most of available healthcare resources.
- Preparation: Emphasizing the value of being prepared, Rothkopf and Edwards guide readers on how to organize medical documents, research treatment options, and stay informed about their condition or the condition of a loved one.
Writing Style
The writing is accessible, engaging, and supportive. Rothkopf and Dr. Edwards balance technical healthcare details with a personal, empathetic tone that encourages readers to take charge of their healthcare journey. Each chapter is straightforward, breaking down complicated topics into manageable sections. Personal anecdotes and real-world examples help illustrate key points, making the content relatable and easy to understand for readers from all backgrounds.
Conclusion
Navigating Your Healthcare Journey is a must-read for patients and caregivers who want to be more confident and informed participants in the healthcare process. With practical advice on advocating for yourself, managing healthcare logistics, and communicating with providers, this book is an invaluable resource for those seeking to improve their healthcare experiences. Whether facing routine medical care or more serious challenges, Rothkopf and Dr. Edwards offer guidance that is both practical and empowering.
Rating: ★★★★★ (5/5)
This book is highly rated for its thoroughness, clarity, and the crucial skills it imparts to readers. Perfect for anyone navigating the healthcare system, especially seniors and their caregivers.
About Us - Cielito Lindo Senior Living
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We are Cielito Lindo – a senior care facility in beautiful San Miguel de Allende and we serve as the assisted living and memory care component of Rancho los Labradores, which is a truly incredible one-of-a-kind country club resort-like gated community. Rancho los Labradores consists of individual villas, man made lakes, cobblestone streets, and a rich array of wonderful amenities (e.g., tennis, club house, pools, cafe, long and short term hotel suites, theater, Cielito Lindo, a la carte assisted living services).
What makes this place so amazing is not only the beauty and sense of community, but also the fact that you can have the lifestyle you desire with the care that you need as those needs arise… and all of this at a cost of living that is less than half of what it would cost comparably in the US.
Learn more about Cielito Lindo here.
Download the Expatriate Guide for Senior Living in Mexico – For your convenience, the entire 50-page guide is available for download as a PDF. Send us an email us at information.cielitolindo@gmail.com or give us a call for any other information you might want
English speaking: 1.888.406.7990 (in US & CDN) 00.1.881.406.7990 (in MX)
Spanish speaking: 1.52.415.155.9547 (in US & CDN) 1.415.155.9547 (in MX)
We would love to hear from you and we are here to serve you with lots of helpful information, support, and zero-pressure sales.