Before You Judge a Caregiver, Walk a Mile in Their Shoes

When we’re not the ones in the thick of caregiving, it’s easy to see things only from our own vantage point—what we think we would do, what seems obvious from the outside. But caregiving isn’t lived from a distance; it’s lived in the day-to-day grind of impossible choices and quiet sacrifices. If there’s ever a moment to trade judgment for compassion, it’s when someone you love is carrying the overwhelming weight of care. Caregivers are often forced to make painful, complex decisions within the limits of emotional, financial, and logistical constraints. This article urges non-caregivers to practice intentional empathy over judgment, offering insight into what caregiving truly involves—and how to support instead of scrutinize.

(Note: About Us, a reference bibliography, related books, videos and apps can be found at the end of this article.)

Article Highlights

  • Caregivers often face judgment from those who aren’t involved in the day-to-day reality of care.
  • Distance creates the illusion of clarity. The further someone is from the caregiving role, the more confident they may feel about how things “should” be done.
  • Most caregiving decisions are not made out of preference, but out of necessity—often between two painful or imperfect options.
  • The “privilege of distance” allows non-caregivers to critique without understanding the emotional, financial, and physical toll caregiving takes.
  • Outsiders may see decisions but miss the constraints—like lack of affordable help, inadequate insurance, or emotional burnout.
  • Well-meaning advice can land as harsh criticism, especially when caregivers are already weighed down by guilt, exhaustion, and self-doubt.
  • Much of caregiving is invisible labor, including sleepless nights, emotional vigilance, and logistical coordination that others never see.
  • Caregiving isn’t a part-time task—it’s a constant state of alertness. There’s no true “off” switch.
  • Family dynamics often leave one person—usually a daughter—shouldering the burden, while others critique from the sidelines.
  • Cultural expectations and moral assumptions can make it harder for caregivers to pursue necessary solutions, like international assisted living.
  • International care (such as in Mexico) is often a sustainable and dignified choice—not a careless or selfish one.
  • Empathy is a practice, not a feeling. It requires intention, restraint, and a willingness to see beyond your own assumptions.
  • Support means showing up, not speaking up. Help with errands, finances, or respite is often more valuable than opinions.
  • Judgment, even when softly spoken, adds emotional weight to someone already carrying a heavy load.
  • To truly support a caregiver, walk beside them—not ahead or above. Offer presence, not pressure.

Introduction – The Privilege of Distance

When Mark flew in for his mother’s birthday, he hadn’t seen her in nearly a year. The decline was apparent—her once-sharp memory now riddled with gaps, her personality dulled by the slow erosion of dementia. He stayed for four days, enough to feel the discomfort of the situation but not the weight of it. His younger sister, Julia, who had moved in to provide full-time care six months ago, looked tired—older somehow. On the second night, over dinner, Mark asked her, “Have you thought about trying memory care? Or maybe a different medication? I read something about coconut oil and brain health.”

He meant well. He really did. But Julia didn’t answer. She just nodded slowly, took a sip of water, and excused herself to help their mother out of the bathroom.

Mark didn’t see the 90-minute phone calls with insurance. He didn’t see the broken sleep, the hollowed-out social life, or the resignation letters Julia never told him she’d written. What Mark saw were decisions. What he missed were the constraints.

This is the privilege of distance; the comfort of forming opinions without living the consequences. And it’s one of the most common dynamics in families managing care for a loved one: the people furthest from the day-to-day often have the most to say about how it should be done.

That distance, whether emotional, physical, or practical, gives rise to a dangerous assumption: that caregivers have choices and that their decisions reflect preference rather than necessity. That if they really wanted to, they could “do better.”

But here’s the truth: most caregiving decisions are made between hard and harder choices. And unless you are the one in the room when those decisions have to be made, after the third ER visit in a month, after the home health nurse quits, after your own body starts to show signs of breakdown, you aren’t seeing the full picture.

You don’t have to be a caregiver to make a difference. But if you’re not one, your job is not to judge. It’s to support.

The Illusion of Choice

From the outside, caregiving decisions can look straightforward. “Why not just hire help?” “Why don’t you move them to a facility? or “Can’t you take some time for yourself? These questions imply that the caregiver is simply overlooking better options when, in truth, those options often don’t exist. Or if they do, they come with consequences so steep they barely qualify as choices at all.

Caregiving isn’t a choose-your-own-adventure story. It’s more like navigating a maze where every turn leads to another sacrifice.

Take the dilemma of assisted living versus burnout. Placing a parent in a care facility can feel like betrayal, especially in families where cultural or emotional expectations demand in-home care. But keeping a loved one at home often comes at the cost of the caregiver’s physical and emotional well-being. Sleep deprivation, back injuries, panic attacks—these aren’t rare; they’re routine. So when a caregiver finally decides on assisted living, it isn’t a casual decision. It’s the result of reaching the edge of collapse.

Or consider the tradeoff between financial stability and subpar help. Hiring competent home health aides is expensive, often prohibitively so. Many caregivers drain their savings, rack up credit card debt, or leave their jobs entirely to provide care themselves. When they opt for cheaper support, they risk neglect or inadequate supervision. And when mistakes happen, they’re judged for “not doing enough, even if they’ve bankrupted themselves trying.

Then there’s the tension between protecting your own mental health and being accused of “giving up. A caregiver who takes a weekend off may be seen as selfish. A sibling who asks for respite may be labeled uncommitted. But caregiving is a marathon, not a sprint, and sustaining it often means stepping back to survive. The world, however, tends to interpret that pause as weakness rather than wisdom.

It’s easy to talk about what someone “should do when you’re not the one doing it.

“Every caregiving decision is a compromise between love and reality.”

There are no clean answers—only messy calculations. What outsiders perceive as flawed decisions are often the least harmful among a set of terrible options. If you’re not making those choices daily, you don’t know what it costs to make them at all.

What You Don’t See: The Hidden Labor of Care

Most caregiving happens behind closed doors—out of sight, off the radar, and beyond most people’s imagination. The moments you do see—a weary smile at a family gathering, a missed phone call, a delayed response to a group text—are surface-level clues to something much heavier: a full-time job wrapped inside another life.

Here’s what you’re not seeing.

You’re not there when the caregiver wakes up at 2:30 a.m. to help their parent to the bathroom, only to discover a fall, a mess, or confusion so profound it’s frightening. You’re not there for the 45-minute call with a pharmacist who gave the wrong dose, or the afternoon lost to wrangling with Medicare over a denial letter. You’re not the one googling symptoms at midnight, hoping this time it’s not another emergency room visit.

You don’t see the repetitive strain injuries from lifting someone twice your weight. You don’t feel the creeping anxiety that builds each time your phone rings. You don’t watch the social calendar shrink, friendships drift, or professional opportunities evaporate—not in one dramatic moment, but in a slow erosion that happens day by day.

Even the simplest decisions take emotional labor. What’s the best time to administer medication? Whether to bathe your loved one today, knowing they’ll resist. Whether today’s forgetfulness is typical or a new warning sign.

And still, somehow, the caregiver must function. They must work, respond to emails, feed themselves, manage bills, and project some version of calm to the rest of the world. Because outwardly, everything looks fine. Outsiders assume that because there’s no visible meltdown, the situation is “manageable.

But what most non-caregivers don’t understand is this:

Caregiving is not a series of tasks—it’s a state of permanent vigilance.

The weight doesn’t lift at night. It doesn’t ease on weekends. It’s not something you “clock out of. And over time, that invisible pressure does real damage: to the body, the mind, and the spirit.

When you only see the surface, it’s easy to make assumptions. Easy to wonder why a caregiver seems tired or scattered, why they snapped at you, why they haven’t returned your call.

But caregiving happens in the background of everything. And until you’ve lived that reality, it’s impossible to fully grasp the sheer magnitude of what it costs.

Family Dynamics: The Judgment Gap

In many families, caregiving becomes an unspoken assignment—quietly handed to the person who lives closest, earns the least, or is deemed to have the “most flexible schedule. Often, that person is a daughter. Sometimes the youngest. Sometimes, she is the one without children of her own. Rarely is the load shared equally, and even more rarely is the sacrifice fully acknowledged.

What follows is a dynamic that’s as painful as it is common: the people doing the least have the most to say.

A sibling across the country might offer advice based on a headline they read. An in-law might question the cleanliness of the house or the quality of care. A cousin might wonder out loud why a parent hasn’t been enrolled in a specific program. None of these people mean harm, necessarily. But their distance gives them the illusion of objectivity. They mistake not being emotionally overwhelmed for having clarity.

What they often don’t realize is this: proximity isn’t just geographic—it’s emotional and practical.

The person in the room, every day, seeing the decline, making the calls, juggling appointments, facing decisions in real-time—that person lives in a different world than the one who visits for a holiday and leaves after lunch. Yet, the one with the least exposure often feels most empowered to critique.

It’s not just frustrating for caregivers—it’s deeply invalidating. Because embedded in each piece of unsolicited advice is an implied accusation: “If I were in your shoes, I’d do it better.”

But that’s just it. You’re not in their shoes.

You didn’t give up your promotion. You don’t wake up multiple times a night. You’re not coordinating prescriptions, arranging transportation, dealing with incontinence, memory loss, or wandering episodes. And you’re not living with the slow-motion grief of watching someone you love fade away.

This judgment gap is often worsened by cultural assumptions. In many families, daughters are expected to “step up without complaint, while sons are praised for the smallest contribution. Emotional labor is treated as invisible, and logistical work goes unnoticed until it fails.

Even among close-knit families, resentment festers. Not just because of the unequal labor, but because the caregiver feels watched, critiqued, and alone.

Caregiving decisions are hard enough without being second-guessed by people who aren’t sharing the load. Before offering feedback, ask yourself: Have I earned the right to speak on this? If the answer is no, consider offering help instead.

The Harm of Even Well-Meaning Judgment

Most people don’t set out to hurt caregivers. Their comments often come from a place of concern, confusion, or even love. But even well-meaning words can land like a slap when they arrive in the form of critique. For caregivers who are already stretched to their emotional and physical limits, judgment, especially from those not directly involved, can be devastating.

It starts small.

“You should take better care of yourself.”

“Have you tried doing it this way?”

“Maybe you’re overreacting.”

Each statement seems harmless on its own. But when layered on top of sleepless nights, financial pressure, and the constant fear of doing something wrong, these comments become heavy. They send a message: You’re not doing enough.

What outsiders often don’t see is that caregivers are already living under the weight of self-imposed guilt. They replay decisions in their heads: Should I have noticed that symptom earlier? Should I have pushed harder for a second opinion? Was I too impatient today?

Now layer on judgment from others, especially family. Every suggestion can feel like an accusation. Every question is an interrogation.

This emotional burden builds slowly but surely. And over time, it begins to reshape the caregiver’s internal narrative. They stop trusting their own instincts. They begin to second-guess decisions they made out of necessity and love. They become ashamed of being tired. Afraid to admit when they’re overwhelmed. That silence breeds isolation—and eventually, burnout.

Burnout is not just about exhaustion. It’s about being criticized while trying your best. It’s about having no margin for error, no room for humanity.

And sometimes, what hurts most isn’t the overt criticism—it’s the quiet indifference. The lack of calls. The absence of questions like “How are you holding up? or “What do you need?”

When caregivers feel judged instead of supported, they begin to emotionally retreat. That retreat can look like irritability, detachment, or silence. But underneath is a profound sense of being misunderstood.

We have to stop assuming that intentions are all that matter. In caregiving, impact matters more.

Because if your words add weight to someone already carrying too much, it doesn’t matter how kind you meant to be. The result is the same: another drop in an already overflowing cup.

When “Love Becomes a Cage: Cultural Expectations vs. Practical Realities

There’s a particular kind of outrage that surfaces when a caregiver makes a decision that challenges someone else’s sense of what’s “appropriate. It’s not uncommon to hear reactions like:

  • “How could you even think about taking Mom to another country?”
  • He should be here with his family!”
  • “You’re just dumping him somewhere cheap—do they even know what they’re doing down there?”

The suggestion that a loved one might receive long-term care in another country—like Mexico or Thailand or Costa Rica—is often met with moral panic. Adult children recoil. Siblings accuse. Friends whisper. All without understanding the complexity behind such a decision.

But let’s be brutally honest:

Caring for someone in the United States is financially ruinous for many families. Even mid-level assisted living can cost $6,000–$8,000 per month—and that doesn’t always include 24/7 supervision or medical care. Add in the need for specialized memory care, mobility assistance, or full-time nursing, and costs skyrocket into unsustainable territory.

So when a caregiver considers international care, it’s not about convenience or “cutting corners.It’s about survival—theirs and their loved one’s. In countries like Mexico, there are reputable, fully staffed care facilities that offer high-quality, personalized attention, better staff-to-patient ratios, and full-time support at a fraction of the cost. In many cases, the care is more genuinely caring, more dignified, and far less clinical than what’s available domestically.

And yet, the judgment persists.

“You can’t just send him away.”

“She belongs with us, not somewhere foreign.”

“It’s not what Dad would’ve wanted.”

But here’s the truth: Dad didn’t want to be incontinent and confused either. Mom didn’t want to be a burden. None of this is what anyone wanted.

The caregiver is being forced to choose between two heartbreaks: financial and emotional collapse, or culturally taboo survival.

Those who object to international care often do so from the sidelines. They’re not the ones staying up all night. They’re not draining their savings. They’re not losing sleep, jobs, or their own health. And yet, they’re quick to defend abstract notions of dignity, loyalty, and proximity, without offering any concrete solutions.

This is where support turns into sabotage. When we prioritize our own comfort over the well-being of both the caregiver and the care recipient, we stop being allies and become obstacles.

So before recoiling in moral outrage, ask yourself:

  • Have I offered an alternative that meets all the needs—medical, emotional, and financial?
  • Am I reacting to what feels unfamiliar, or to what’s actually unsafe?
  • Is my love making things better for the caregiver, or just harder?

Sometimes the most loving decision looks unfamiliar. Sometimes it’s made in pesos, not dollars.

But love is not geography. Love is care. And care must be sustainable.

Empathy Is an Intentional Act

Empathy is often mistaken for sentiment. We confuse it with saying, “I feel bad for them, or “I can’t imagine how hard that must be. But real empathy—the kind that makes a difference—isn’t passive. It’s not about pity. It’s about presence, awareness, and restraint. It’s a practice—a decision.

Empathy isn’t instinctual—it’s intentional.

It requires a higher level of awareness and emotional maturity to pause, step outside ourselves, and try to see the world from someone else’s vantage point.

When it comes to caregiving, this means resisting the human impulse to judge, advise, or compare. It means recognizing that what looks like a bad decision from the outside may be the least damaging of several terrible options.

A caregiver might hire part-time help instead of full-time care, not because it’s ideal, but because it’s what they can afford. They might choose to place a loved one in assisted living—not because they’re giving up, but because they’ve reached the brink of collapse. They might cancel dinner plans, forget birthdays, or show up distracted—not because they don’t care, but because they’re running on fumes.

The caregiver is almost always choosing from a menu of bad options. And they carry a burden you rarely see.

In those moments, what they don’t need is your opinion. They don’t need your critique. They need your grace.

Empathy is choosing to withhold judgment. To ask before advising. To say, “That sounds really hard—how can I support you? instead of “Have you tried…?

It’s understanding that love doesn’t always look like perfection. Sometimes it looks like hard boundaries. Sometimes it looks like accepting limitations. Sometimes it looks like letting go.

And sometimes, the most empathetic thing you can do is to say nothing at all—except: “I see you. I’m here. What do you need?”

Support doesn’t always mean stepping in. Often, it means standing beside someone and simply refusing to add weight to their load.

When to Speak—and When to Stay Silent

There’s a fine line between support and intrusion, and that line matters when it comes to caregiving. Caregivers live under constant pressure, which means even the most casual comment can land like a judgment. That’s why knowing when to speak—and how—is just as important as what you say.

Before you offer advice, ask yourself:

  • Am I contributing in a meaningful way?
  • Have I offered my time, money, or emotional support? If not, advice may feel like critique rather than care.
  • Do I truly understand the situation?
  • Have I spent time with the care recipient recently? Do I know the caregiver’s routine, struggles, or limitations? If the answer is no, pause.
  • Am I projecting my values onto someone else’s reality?
  • It’s easy to say what you would do, but you’re not managing their exhaustion, budget, or grief.

If you’re unsure whether to speak, the best default is to listen first.

Instead of:

“Why don’t you just…?”

Try:

“I’ve been thinking about how hard this must be. How are you holding up?”

Instead of:

“You should really consider…”

Try:

“I’m here if you ever want to talk through options—or just vent.”

And remember: Silence can be solidarity. Not everything needs to be fixed. Some things just need to be witnessed.

The most supportive people in a caregiver’s life are rarely the loudest. They’re the ones who show up without needing credit. The ones who check in without checking out when things get hard. The ones who offer help without offering themselves as the solution.

If you find yourself about to offer advice, pause. Ask yourself: Is this about helping them, or making myself feel useful?

Sometimes, the kindest thing you can say is: “I trust you. And I’m here for whatever you need.”

A Call to Allyship

If you’re not the primary caregiver, you still have a role to play—but it’s not to evaluate. It’s to elevate. Your role is ally, not auditor. And that shift—from detached observer to intentional supporter—can make all the difference.

Being a caregiving ally means choosing to participate, even when it’s inconvenient, uncomfortable, or thankless. It means recognizing that love for your parent, spouse, or friend includes caring for the person doing the daily labor of care.

This doesn’t require grand gestures. In fact, it’s often the smallest actions that mean the most:

  • Offering a few hours of respite so the caregiver can rest without guilt.
  • Contributing to the cost of care, even in modest ways.
  • Handling one stressful task, like scheduling appointments, managing pharmacy refills, or delivering groceries.
  • Simply checking in regularly and asking, “What would actually be helpful this week?”

Allyship means acting, not assuming, and supporting, not suggesting, and listening more than leading.

It also means showing up during the quiet, unremarkable times, not just in emergencies. Caregivers are often surrounded during a crisis, then forgotten when the real work begins again.

And when disagreements arise, as they often do in families, allyship means asking: Am I fighting to be right, or am I helping lighten the load? Sometimes, stepping back, biting your tongue, or accepting a decision you don’t fully agree with is the most respectful form of support.

Being an ally isn’t always intuitive, especially if you haven’t experienced caregiving firsthand. But if you love the person being cared for, there’s a moral obligation to care, too, not just from a distance, but in deeds.

Because ultimately, caregiving should never be a one-person sacrifice. It should be a shared responsibility, even if unevenly distributed. And when it’s not, those on the sidelines have a choice: add weight to the burden, or help carry some of it.

Closing – Walk With, Not Over

Caregiving is one of the most demanding, tender, and lonely roles a person can step into. It’s built on love, but shaped by limits. And too often, it’s made harder not by the work itself, but by the judgments of those standing on the outside.

If you’ve never been a primary caregiver, you may never fully grasp the pressure, the impossible tradeoffs, or the grief that comes not just from loss, but from the slow, daily erosion of the life you used to have. And that’s okay. You don’t need to understand everything to be supportive. You just need to decide that empathy matters more than being right.

“Walk a mile in someone else’s moccasins before you criticize them.”

— Native American Proverb

This is more than a proverb—it’s a prescription for how to be human with each other.

Caregivers aren’t asking for medals. They’re not asking for perfection or endless praise. What they need is much simpler: to be believed, to be supported, and to be given the space to make hard decisions without fear of being shamed for them.

So if you find yourself tempted to offer an opinion, pause. If you feel compelled to critique, ask yourself why. And if you’re unsure what to do, simply ask, “How can I help?”

Because in the end, caregivers don’t need another voice telling them what they’re doing wrong. They need someone to walk beside them, to carry part of the load—even if just for a little while.

Walk with, not over. That’s how we build families that care—not just for the sick, but for the ones doing the caring.

10 Ways to Support a Caregiver Today

(Especially if You’re Not One Yourself)

Ask “How can I help?”—and mean it.

Be specific: “Can I pick up groceries?“Want me to sit with them for a couple of hours?

Don’t offer advice unless you’re asked.

If you’re not in the trenches, avoid “You should… or “Why don’t you just…?”

Contribute financially if you can.

Even small contributions toward medications, supplies, or meals make a difference.

Offer time, not just talk.

Show up. Do the dishes. Help with errands. Actions speak volumes.

Be a consistent check-in.

Don’t just text during crises. A weekly call or message saying “Thinking of you matters.

Include them—even if they often say no.

Invite them anyway. It reminds them they’re not forgotten.

Validate their decisions.

Say: “I trust you.“I know you’re doing your best.“That must’ve been so hard.

Don’t compare stories.

This isn’t a competition. Your friend’s cousin’s situation is irrelevant.

Remember important dates.

Anniversary of a diagnosis? The day their parent moved into care? These are emotional landmines—acknowledging them matters.

Be quiet when needed. Loud when necessary.

Sometimes, your silent presence is enough. Other times, be their advocate. Know the difference.

Disclaimer: As a Senior Health Advocacy Journalist, I strive to conduct thorough research and bring complex topics to the forefront of public awareness. However, I am not a licensed legal, medical, or financial professional. Therefore, it is important to seek advice from qualified professionals before making any significant decisions based on the information I provide.

Copyright: All text © 2025 James M. Sims and all images exclusive rights belong to James M. Sims and Midjourney unless otherwise noted.

References

Related Cielito Lindo Articles

Sims, J. M. (n.d.). Balancing love and letting go: Key considerations for terminal care. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/balancing-love-and-letting-go-key-considerations-for-terminal-care/

Sims, J. M. (n.d.). Empowering caregivers to make hard decisions without judgment or guilt. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/empowering-caregivers-to-make-hard-decisions-without-judgment-or-guilt/

Sims, J. M. (n.d.). End-of-life care: Understanding the roles of hospice, ICU, palliative care, and death doulas. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/end-of-life-care-understanding-the-roles-of-hospice-icu-palliative-care-and-death-doulas/

Sims, J. M. (n.d.). Ensuring quality care: The crucial role of self-advocacy in a flawed healthcare system. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/ensuring-quality-care-the-crucial-role-of-self-advocacy-in-a-flawed-healthcare-system/

Sims, J. M. (n.d.). Finding our way: A guide to caring for aging parents. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/finding-our-way-a-guide-to-caring-for-aging-parents/

Sims, J. M. (n.d.). Navigating family dynamics in the search for senior care solutions. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/navigating-family-dynamics-in-the-search-for-senior-care-solutions/

Sims, J. M. (n.d.). The art of personalized care: A journey beyond the golden rule. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/the-art-of-personalized-care-a-journey-beyond-the-golden-rule/

Sims, J. M. (n.d.). Unseen heroes: Understanding and supporting family caregivers. Cielito Lindo Senior Living. https://cielitolindoseniorliving.com/unseen-heroes-understanding-and-supporting-family-caregivers/

Articles and Guides

Cohen, M. (2021, October 27). When love hurts: Navigating family caregiving with empathy. AARP. https://www.aarp.org/caregiving/life-balance/info-2021/empathy-for-caregivers.html

Family Caregiver Alliance. (n.d.). Caregiving 101: On being a caregiver. National Center on Caregiving. https://www.caregiver.org/resource/caregiving-101-being-caregiver/

Goyer, A. (2017, May 9). 10 tips for family caregivers. AARP. https://www.aarp.org/caregiving/basics/info-2017/family-caregiver-support.html

McClanahan, J. (2022, July 20). What not to say to a family caregiver. DailyCaring. https://dailycaring.com/what-not-to-say-to-a-family-caregiver/

Websites

Caregiver Action Network. (n.d.). Family caregiver toolbox. https://www.caregiveraction.org/family-caregiver-toolbox

National Alliance for Caregiving. (n.d.). Research and resources for caregivers. https://www.caregiving.org/

U.S. Department of Health and Human Services. (n.d.). Eldercare locator. https://eldercare.acl.gov/

Research Papers

Feinberg, L. F., Reinhard, S. C., Houser, A., & Choula, R. (2011). Valuing the invaluable: 2011 update – The growing contributions and costs of family caregiving. AARP Public Policy Institute. https://assets.aarp.org/rgcenter/ppi/ltc/i51-caregiving.pdf

Schulz, R., & Eden, J. (Eds.). (2016). Families caring for an aging America. National Academies Press. https://doi.org/10.17226/23606

Books

Abrams, R. C. (2021). The caregiving trap: Solutions for life’s unexpected changes. Rowman & Littlefield. ISBN: 9781538140963

Fackler, J. (2019). A caregiver’s guide to dementia: Using strategies to prevent, reduce and manage behavioral symptoms. Johns Hopkins University Press. ISBN: 9781421433095

Lynch, C. (2018). Resilient caregiving: How to reduce stress and prevent burnout in your caregiving journey. CreateSpace Independent Publishing. ISBN: 9781987394152

Meyer, M. M., & Derr, P. (2020). The ultimate caregiving guide: Navigating the complexities of long-term care. Skyhorse Publishing. ISBN: 9781510750869

Additional Resources:

Video: Caregivers Must Be Selfish To Survive | Dave Nassaney | TEDxWilmingtonWomen

​In this TEDx talk, Dave Nassaney emphasizes the importance of caregivers prioritizing their own well-being to effectively support their loved ones. He shares personal experiences, highlighting the overwhelming challenges caregivers face, including guilt, isolation, and depression. Nassaney stresses that many caregivers may become sicker than those they care for, with a significant percentage dying before their loved ones. He advocates for caregivers to join support groups and adopt a mindset of self-care, using the metaphor of putting on one’s own oxygen mask first. By doing so, caregivers can not only survive but thrive, ultimately providing better care for their loved ones.

View the video here.

Highlights:

0:10 – Almost everybody will eventually care for a loved one or need care themselves.

0:35 – One third of the US population are caregivers, with many feeling depressed.

1:12 – 30% of caregivers may die before their loved ones.

3:20 – The speaker’s wife suffered a massive stroke, changing his role to caregiver.

4:10 – The speaker realized he needed to be selfish to survive caregiving.

5:55 – Joining a caregiver support group changed everything for him.

6:06 – The metaphor of putting on your own mask first in emergencies applies to caregiving.

7:34 – The speaker’s wife is doing well because he learned to prioritize his needs.

9:00 – Imagine if every new caregiver was healthy and capable from the start.

10:04 – Caregivers can thrive and be joyful while providing care.

Video: What is the Caregiver’s Dilemma | Janet Fouts | TEDxBeaconStreet

​In “What is the Caregiver’s Dilemma,” Janet Fouts shares her personal journey as a caregiver facing the challenges of balancing self-care with caring for a loved one. She emphasizes that neglecting one’s own health can lead to burnout and stress, which ultimately affects the quality of care provided. Fouts introduces mindfulness as a powerful tool to manage stress and improve well-being, advocating for “micro-doses” of mindfulness throughout the day. Simple practices like pausing and focusing on positive moments can significantly enhance resilience and emotional health. Ultimately, she encourages caregivers to prioritize their own needs to be better equipped to care for others.

View the video here

Highlights:

0:12 – When my family got the cancer diagnosis, life hit the fan big time.

1:00 – The harder it got, the more I realized my own mental and physical health was suffering.

1:59 – The caregiver’s dilemma is how do we care for ourselves and those we love?

2:55 – I discovered the simple, elegant power of mindfulness.

4:38 – I realized I don’t have time to not be mindful because it helps me to be more creative and productive.

5:19 – I couldn’t get out of that negative cycle of stress.

7:41 – When you feel yourself slipping down that slope towards overwhelm, stop for a pause.

9:12 – The pause becomes a habit that refreshes, restores, and revives.

10:11 – Mindfulness can be about choosing what’s important in this moment.

11:34 – May you be happy, may you be safe, and may you have ease.

Video: Caring for the Caregiver: Fight Caregiver Stress and Prevent Burnout

The video discusses the significant stress and burnout faced by caregivers, particularly those caring for individuals with Alzheimer’s disease. It highlights the psychological and physical consequences of caregiving, including increased rates of depression and cardiovascular diseases. Research indicates that caregivers often feel a loss of control and experience high levels of stress, which can lead to severe health risks. The presentation emphasizes the growing number of Alzheimer’s patients and the urgent need for support systems for caregivers. Key findings reveal that caregivers exhibit accelerated biological aging and have a higher risk of mortality compared to non-caregivers, underscoring the importance of addressing caregiver well-being.

​The video further explores the physiological and psychological impacts of caregiving, emphasizing the need for effective interventions. It highlights the importance of caregivers engaging in enjoyable activities to improve their mood and reduce stress. The discussion includes findings from studies that show significant reductions in depressive symptoms and inflammatory markers among caregivers who participated in structured support programs. The need for larger-scale studies to validate these findings is also addressed, alongside a clarification of different dementia types and their implications for caregiving.

View the video here.

Highlights:

0:22 – Introduction to the Institute for Research on Aging and its mission.

1:12 – Welcome message from Danielle Glorioso, emphasizing the importance of caregiver support.

3:13 – Overview of findings related to caregivers of individuals with Alzheimer’s disease.

5:27 – Discussion on the psychological and physical consequences of caregiving.

6:43 – Statistics on the increasing number of Alzheimer’s patients and the impact on caregivers.

10:06 – Caregivers report significant feelings of loss of control and stress.

12:06 – Study findings on mortality rates among caregivers compared to non-caregivers.

14:40 – Increased risk of cardiovascular diseases in caregivers highlighted.

19:00 – The correlation between depression in caregivers and cardiovascular health risks.

24:41 – Accelerated biological aging observed in caregivers compared to non-caregivers.

31:08 – Discussing arterial dilation in caregivers and its relation to cardiovascular events.

32:43 – The importance of developing skills to cope with caregiving challenges.

34:00 – Emphasizing the need for caregivers to engage in rewarding activities.

37:14 – Overview of a study assessing the impact of interventions on caregivers’ health.

41:02 – Results showing significant reductions in depressive symptoms among caregivers.

42:19 – Behavioral activation condition leading to a notable decrease in inflammatory markers.

43:06 – Highlighting the need for larger studies to confirm findings.

45:08 – Clarifying the differences between various types of dementia.

49:10 – A caregiver’s personal story illustrating the benefits of engaging in pleasurable activities.

52:06 – Discussing the effectiveness of multicomponent interventions for caregiver support.

About Us - Cielito Lindo Senior Living

Thanks for letting us share this content with you. If you would like to see other articles like this one, they can be found here.

We are Cielito Lindo – a senior care facility in beautiful San Miguel de Allende and we serve as the assisted living and memory care component of Rancho los Labradores, which is a truly incredible one-of-a-kind country club resort-like gated community.  Rancho los Labradores consists of individual villas, man made lakes, cobblestone streets, and a rich array of wonderful amenities (e.g., tennis, club house, pools, cafe, long and short term hotel suites, theater, Cielito Lindo, a la carte assisted living services). 

What makes this place so amazing is not only the beauty and sense of community, but also the fact that you can have the lifestyle you desire with the care that you need as those needs arise… and all of this at a cost of living that is less than half of what it would cost comparably in the US.

Learn more about Cielito Lindo here

Download the Expatriate Guide for Senior Living in Mexico – For your convenience, the entire 50-page guide is available for download as a PDF.  Send us an email us  at information.cielitolindo@gmail.com or give us a call for any other information you might want

English speaking:  1.888.406.7990 (in US & CDN)     00.1.881.406.7990 (in MX)

Spanish speaking:  011.52.415.101.0201 (in US & CDN)   1.415.101.0201 (in MX)

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